Every April around this time of year, we sponsor a walk for our little great grandson, Jerry Daniel aka JD; he was born February 17, 2023 with CDH (Congenital diaphragmatic hernia (CDH) is a rare condition that occurs when the diaphragm – the muscle that separates the chest from the abdomen – fails to close during prenatal development. This allows abdominal organs (stomach, intestines, and/or liver) to move into the chest. When the abdominal organs are in the chest, they can crowd the heart and lungs and keep the lungs from growing normally.)
He spent 8 months in hospital, having 10 surgeries to correct the hernia. The worse probability came when he had a twist in his small intestine and several inches were removed. Now he has a g button (One of the most common types of G tubes is a low-profile tube sometimes called a “button.” This type of tube lays on top of the abdominal wall and is kept in place in the stomach by a water-filled balloon. A special extension tube is attached when administering medicines or feedings.). He is fed constantly thru this g button.
At this writing JD is thriving little boy, learning to crawl, even adapting to his feed tube attached. He is always in a good mood! We are happy to bring awareness as we walk for JD and other children born with CDH.
We had a nice crowd that gathered at Oma’s ranch for breakfast, then our walk down the ranch road, watched patiently by herds of cattle and horses.
We returned to enjoy brisket lunch with all the fixings! The afternoon is spent visiting and watching JD as he belly laughs about the least little thing. We love our adventurous boy! And will continue to walk every April!
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